A few weeks ago while doing an ultrasound our Dr. alerted us of some problems he found. After an additional ultrasound by a specialist we have been told our new baby has Achondroplasia, which is a form of dwarfism. We were very shocked and went through a time of sadness and disbelief, but have found peace through our Heavenly Father and his plan for us. We know she is a special spirit and feel blessed to have her in our family. At this time, everything looks normal, except her arms and legs….this means she will be smart and live a fairly normal life despite her disabilities. Please feel free to ask us any questions you may have.
This conditions does create a lot of concern with a natural childbirth. For this reason I’ll be having a c-section in Sacrament where they have more specialists. After her birth she will go through genetic testing (to determine 100% what kind of dwarfism she has) and xrays (to make she all organs are healthy and normal). If any additional care or surgery is needed they will let us know then.
We know we will love and adore her and hope to be the best parents and big sister we can. Thank you for your love and support and we can’t wait for you to meet Madilynn Grace Laufer when she makes her grand entrance to this Earthly life!!
Love,
Alex, Kerri and Alexa
3 months ago
21 comments:
Have just found your blogspot through Ure. Last May our Grandson Caden, was born with Achon. The exact same thing happened to my daughter as you. We were all in shock and disbelief. The "unknown" was so unsettling. But, on May 20, our precious Caden was born..What an absolute doll and one of the joys of our lives! We always say God must have really trusted us to give us Caden. He is a true joy and the happiest little guy ever! We would love to stay in touch with you and pray for your family.
Blessings, Beth Lowney
Have just found your blogspot through Ure. Last May our Grandson Caden, was born with Achon. The exact same thing happened to my daughter as you. We were all in shock and disbelief. The "unknown" was so unsettling. But, on May 20, our precious Caden was born..What an absolute doll and one of the joys of our lives! We always say God must have really trusted us to give us Caden. He is a true joy and the happiest little guy ever! We would love to stay in touch with you and pray for your family.
Blessings, Beth Lowney
Hello my name is Riley Windeler and I have Hypochondroplasia which is very simular to Achondroplasia. If you have any questions about Achondroplasia or dwarfism in general feel free to contact me. canadian_hockey03_1@hotmail.com
Riley Windeler
Congratulations on your pregnancy:O) You're embarking on a great new journey with a lot of wonderful blessings with your precious little bundle.
We have a 4 year old daughter Ashley with achondroplasia. If you'd like to learn more about her or connect with other parents, you can find other POLP (Parents Of Little People)on our blog. http://ashleybrookeangel.blogspot.com
There is also a facebook group called POLP with hundreds of parents just like us to answer any questions you have:O)
I love you and I cannot wait to meet your new little one!
Your daughter will be beautiful :0) You have lots of support from your family and friends! We love you!
I love how all these people are contacting you to help and give you information. The internet is so wonderful!! ;) Love you,
Amber
It is so great you have so much support. You know I love you and know you are an amazing mother and your family is such a specail family and Maddilynn (Maddie) will be around so mnay who love her. We can't wait for her to join our family. I love you :)
Hello!
I just wanted to leave you a comment to let you know that if your child does have achondroplasia, she'll be just fine! I myself have a dwarfism but a different type.
I know it must be scary, but take heart that she'll do great! I know many individuals with achon who are college graduates, lawyers, doctors, teachers, etc...Many are married and have children of their own!
All you can do is raise her like any other child when it comes to discipline, chores, education, goals, and expectations in life..
Lastly, LPA is a wonderful group for your family to get involved with! It's great for children with a dwarfism to have friends like them and rolemodels with it as well to see life can be awesome, but it's up to them!
Good luck! :)
-Monique, 31, Wisconsin
Thank you kerri for posting this... It is so wonderful to see those who have already responded and all the wondeful support! We are all going to learn so much from this journey with all of you. I am so greatful to be Maddie's auntie! We all can't wait to meet her. We all love you so much!!!
PS
I think we need a waiting for Maddie blog... Just cause I always have to share my 2 cents..lol
Love you tons!!
What strong testimonies you and your husband have! You and your little girl are in my prayers!! Hope things go smoothly for you and you continue to feel peace for your family!
Hey Kerri!
What a blessing you have been given to take care of one of our heavenly Father's special spirits! You and your family will be so blessed for having her in your family. Children with special needs are just that...SPECIAL! She is going to be absolutely adorable! good luck with the remainder of your pregnancy and delivery! Enjoy the journey!
Sorry Kerri...I was logged in our Relief Society email account! It's just me! ;-)
I'm so excited to meet your new little one Kerri. PLEASE let us know how we can help you out. I'm still planning on bring you dinner after the baby is here. We love you guys!! You're in our prayers always :)
Everything will be just fine! I can't wait to meet her!
Thank you for leaving a comment on my blog. I'm sure this is a confusing time for you. My little boy has been the biggest blessing in our lives just like I know your little girl will be. I've found a family in the LP world. Please let me know if you have any questions! HUGS!
Thank you for leaving a comment on my blog! My little Cole is such a beautiful boy inside and out. I'm sure it's a confusing time for you. I'm here if you have any questions!
HUGS!
We love you and will keep your family in our prayers. This sweet baby is blessed to be coming to a mom as special as you. Lot of love!
We will keep you guys in our prayers. We love you! Can't wait to see pics of your new little one. :)
What a sweet blessing to see all of this support from near and far. I always knew you guys were awesome, this just proves it! Can't wait to hear all about your sweet little bundle, and how she transforms your cute family! Hugs & Hugs!!
i am sooo glad that you are able to get all this support from so many who know so much about achon. You are an amazing mom, and she will be a beautiful addition to your family. :) Can't wait to see pics! xoxo
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