Our Corner of Heaven

On Monday Madilynn had her 4th sleep study. It's the biggest joke, who can sleep with all that stuff attached to them. She spent most of the night pulling on all the leads and being awake. We got to the sleep center at 7p and she was already so tired, she was in bed by 830 and then up at 6a the next morning. We left the sleep center at 630A to get to Childrens hospital Oakland for an MRI (her 2nd). She was tired and hungry by the time we got there. I finally put her to sleep when they took her away. There is something about handing your child over to a stranger and watching them walk down a long hall behind double doors that is a bit unsettling. I cried (I was so tired too) as I watched what was almost like a movie to me thinking, "she better come back to me in the same or better condition she is in now!". The MRI was to check the opening at the base of her skull to see how her spinal cord was holding up. After her recovery we went up to see Dr. Sun in his office and they squeezed us in (his office is busy!!!). It appears her spinal cord is more compressed than before and she will be needing surgery by the end of the week or beginning of next. I cried again. There are great complications with this surgery (death, becoming paralyzed) but the risks of not having it are the same but with a sooner outcome. I am afraid to send her off again and hope and pray everything will be fine. We're just waiting now for his office to call with the time and day, nothing could be worse than waiting, waiting, waiting.